My Children Want You To Know
My children want you to know that being of few words does not mean being of little intelligence.
My children want you to know that being socially awkward doesn't mean they cannot be wonderful, kind, loving and loyal friends.
My children want you to know that they stim because they need to, not because they are brats with little self-control who wish to irritate you. My children want you to know that they are not "picky", "wussy" or "incorrigible" because they cannot tolerate certain lights, sounds, fabrics or foods. They experience the world quite differently than you do from a sensory standpoint, and they are doing their best to process and handle all of it. Think of having the volume turned up on every one of your senses at all times.
My children want you to know that they do not lack self-control. They require ten times as much self-control as most children because their environment is more distracting and abrasive than you might be able to imagine.
My children want you to know that humiliation as a tactic to get them to behave more typically does not work, and will simply make them fearful, ashamed and unwilling to trust people in the future.
My children want you to know that they interpret their world very literally, so they may not understand metaphor and figures of speech and interpret them as a literal statement. This does not mean they are stupid, it just means they think differently than you do. My children want you to know that they are not rude or mean, they are just very honest about how they perceive the world and do not filter their responses for the sake of politeness. This is not a choice, they simply think in pure logic when evaluating their environment and ask questions about what they see, hear or experience. They do not wish to offend anyone.
My children want you to know that there is a difference between a temper tantrum and an autistic meltdown. While both may look extremely similar (to the point mom and dad might have trouble discerning the difference) the cause of each is quite different, and so is the solution. Discipline will not fix a meltdown. Unkind words about our "poor parenting" and telling us that a good spanking is in order will not yield a positive result. When an autistic child is experiencing a meltdown, they need the offending presence to be removed. This usually means moving to a quiet place, being held close (my son) or being given some space (my daughter) to be able to find equilibrium again. If my son decides to sit barefoot in his stroller in the mall during winter, deal with it. If my daughter wants to hum and walk on her toes in the mall, likewise, deal with it. Dealing with it is exactly what they are doing.
My children want you to know that they are not sad because they do not experience the world in the way you do. Their experience is all they know and they find it quite normal. What they struggle with is when people question and criticize their view of the world and say that it is defective or wrong. How would you like it if someone told you you were wrong for the way you experienced the world around you, or tried to force you to see it and react to it their way?

My children have autism. They also have hopes, dreams, goals, talents, creativity, love, kindness, compassion, a sense of humor, intelligence, interests, personalities, wishes, and people who love them very much for exactly who they are. My children want you to know that they are valuable, lovable, precious individuals who have so much to offer this world, if only you will see them for who they are.
Original Post at: Static Vox and appears here with permission.
Posted in:
on August 27, 2010 at 8:57am


Comments
Thank you for sharing this here!
I've always loved this piece, and I'm so glad that it's found its way here!
What an excellent piece. Thank you for sharing with us.
I can relate to some degree, with SPD child. Funny, I went to write a similar angled post today.. then came across this... saved me the effort. Well done.
Thank you for such a true and sensitive testimony. I will put a link on my blog.
I have translated it in French, and I wanted your permission to post it too.
Thank you.
Great article! I found myself agreeing with it all the way through.
Metta
Ben Edwards
I love this, as the silent voice that is still there, a miunderstood, miss interrupted communication often means some feel a need, a right to exclude!
They also want you to know that just because they do not have a standardized view of your actions, or guess what you are thinking, or interpret what you say or do as you intend (or think you intend) it to be does not mean they are "mind blind". It only means they view your actions and words from a different, unique perspective and a different point along the circle of varied perspectives, and they lack telepathy.
no way the military will take him. He's woniryrg about long-term care, because he does not believe his son can be self-sufficient. that was a hard blow and depressing. I keep looking for the crystal ball. I got excited the other day because my son said I love you SPONTANEOUSLY! But at almost 32 months we're not really having real conversations like I am with his twin brother. I say who were easter bunny's helpers and although he knows their names he answers carrot. I used to obsess over language and now I obsess over reasoning ability. this past week I've been trying to figure out how come nobody talks about what the milestones are that lead to reasoning ability. do you think language and reasoning are synonomous? I don't think I do anymore. Sorry for the ramble. But sometimes I do think this: that (a) there are too many links between autism and motor issues, and my son has the latter for sure (and I think since I've focused on those there have been collateral improvements in other areas, by the way); (b) the eides say that both spd and autism involve problems with long-distance connections, I think it must be those fast-spiking interneurons; (c) it does seem sometimes like my son although sweet and affectionate, has these kind of jumping random associations between things rather than I can't describe what I want to, but appropriate categorization comes to mind. It also makes me wonder what would he have been like WITHOUT the intervention? How easy would it have been for me to LET him tune out? would he have seemed more autistic? Long before the dx, I was doing all the heavy lifting in his development. It was like I was doing floortime and didn't even know it. I'm sorry this is more of a ramble even than usual. someday I'll get it together to start my own blog. Maybe one of us should start a website devoted to PDD-NOS. (ps did I tell you about the blurb I read that they used to dx kids like mine anyway with a combo of adhd and something related to motor?)
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