Advocacy

Autism Speaks, I Want to Say

Written by Amy Sequenzia

I want to say that I speak for myself concerning my neurology and how I communicate. 

I want to say that if you want to show the benefits of AAC, you should ask AAC users and not their parents or self-important “experts”. 

I want to say that you might have chosen to forget that AAC gives me a voice you cannot ignore but I will not be silenced. 

I want to say that, once again, you are wrong. AAC does not make me look more “normal”. I am not your definition of normal. I don’t want to be what you call normal. I am, and will always be, a proud Autistic, very distinguishable from my peers.


Posted in:

on March 28, 2013 at 12:07pm


Autism Acceptance – Leading the Conversation

Written by Amy Sequenzia

I want to talk about Autism Acceptance again. I want to talk about Autism Acceptance because soon we will be, again, referred to as tragedies, burdens, afflictions. This will go on, more than usual, for the whole month of April. 

April is the month chosen by non-autistics to raise “awareness” about our existence. But most of the conversation does not include us, autistics, and the outcomes of such conversations do not improve our lives. 

Autism “Awareness” Month is a frustrating and sad month for Autistics, because it excludes us, while portraying us in a negative way. 

It has become a “war cry” for advocacy organizations. But it has become damaging to us.

There are myths and misconceptions that get talked over and over without our voices to educate the public: 


Posted in:

on February 5, 2013 at 9:16am


Autistic Advocates to Testify at Congressional Hearing

Addressing concerns about representation of autistic women:
Written by Mara Fritts

Many of you have contacted Autism Women’s Network with concerns that autistic women were not invited to testify before the Nov. 29, 2012 House Committee on Oversight and Government Reform to speak in behalf of their unique needs.

First, please understand that initially no autistic people were even invited until yesterday, and this late-hour invitation came about only after the onset of social media protests along with ASAN’s petition about the exclusion of autistic input. At this point, we are grateful that the Autistic community will indeed be present at the Hearing with Michael John Carley of Grasp and Ari Ne’eman of Autistic Self Advocacy Network to speak about the needs of all autistic people.


Posted in:

on November 27, 2012 at 5:51pm


Safety Skills for Asperger Women: How to Save a Perfectly Good Female Life

Written by Liane Holliday Willey

The really tough parts of Asperger syndrome are obviously the most difficult to talk about, but if we don't... if we pretend life with AS is all jolly and cheer-filled, then we set ourselves up for certain failure.

This book was exceptionally hard for me to write because it shows my vulnerability and because it made me remember things I wish I could forget; things I wish never happened. Nevertheless, I am glad...


Posted in:

on November 13, 2012 at 3:59pm


Autistics Speaking Day 2012: Two Years Since it all Began

Autistic Self Advocates, Loud and Proud
Written by Sharon daVanport

Has it really been two years since it all began? Yes! It seems like only yesterday when autistic self-advocates Kathryn Bjornstad-Kelly, ASAN Communications Assistant, and Corina Becker, Vice-President of Autism Women's Network first proposed a day for people on the autism spectrum to counter a Communications Shutdown on Twitter and Facebook.

Communications Shutdown was proposed by a group in Australia as a day to stop online communications in order for non-autistic people to understand the communication challenges of people on the autism spectrum; sort of like asking others to walk in the shoes of an autistic person for a day.


Posted in:

on November 1, 2012 at 12:07pm


On Gratitude

For New Autism Parents
Written by ©Shannon Des Roches Rosa

My son Leo has passed the eleven and a half years mark. I feel like I'm finally hitting my stride as an autism parent, in terms of accepting Leo on his own terms, and not giving a damn about the imaginary "easier" alternate reality society thinks I'm supposed to pine after. This means I think a lot about the information and attitudes I'd have wanted to jack, Neuromancer-style, straight into my brain eight years ago so I could instantly be the parent Leo needed me to be.


Posted in:

on August 6, 2012 at 12:52pm


My Children Want You to Know

Written by Shannon Bonnette

My children are both diagnosed on the autism spectrum. I wrote this to address some of the misconceptions and stereotypes about autism, and to help their voices be heard.

My children want you to know that being of few words does not mean being of little intelligence.

My children want you to know that being socially awkward doesn't mean they cannot be wonderful, kind, loving, and loyal friends.

My children want you to know that they may flap their arms, rock, hum, or spin because they need to, not because they are brats with little self-control who wish to irritate you.


Posted in:

on August 3, 2012 at 9:56am


On Autism and the Colorado Shooting

An Open Letter to Joe Scarborough and MSNBC
Written by Rachel Cohen-Rottenberg

Dear Mr. Scarborough and MSNBC: 

Nearly one week has passed since you, Mr. Scarborough, made the false and unsupportable claim that most people who commit the kind of violence seen in Aurora, Colorado are on the autism spectrum. 

Your statement was both prejudicial and factually incorrect. Not a single mass murderer has ever been diagnosed with autism. Not one. Moreover, there is no evidence linking autism to premeditated, criminal violence. Absolutely none.


Posted in:

on July 30, 2012 at 11:59am


AUTCOM 2012 Conference

Click >>here<< to register for AUTCOM 2012 Confernce. (Baltimore, MD)

Date: 
Friday, October 5, 2012 - 1:00am EDT - Saturday, October 6, 2012 - 1:00am EDT

Autism Campus Inclusion (ACI) Summer Institute

ASAN logoThe ACI Summer Institute is a week-long training for Autistic college students. The training is meant to prepare students to engage in self-advocacy and pro-neurodiversity activism on their college campuses. 

Curriculum based in collaboration with the Daniel Jordan Fiddle Foundation in the Empowering Disabled Leaders handbook and materials produced and developed with the help of University of New Hampshire's Institute on Disability.

The participants will learn how to engage in activism and advocacy activities on their college campuses.

Date: 
Sunday, August 12, 2012 - 1:00am EDT - Friday, August 17, 2012 - 1:00am EDT
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