autism

Being Different

From her book: Hidden in My Fingers
Written by by Lydia Wayman

I've heard that what makes me different
Also makes me wrong or bad
That just because I'm different
Means that I should be sad.
But I am here to tell you
That different's not all plight
That this thing which makes me different
Is the reason why I write.
Without my brand of different
I might not have a voice unique
Rather than express myself via keyboard
I might be prone to speak.
Now, there's nothing wrong with speaking
Please do hear me through
I just happen to love typing
Each day sparks my mind anew.
Next time you might curse different
Clothe your cursing in this shawl
That it's not so bad, this different
It can be beautiful, after all.


Posted in:

on April 25, 2012 at 12:54pm


Calling Ohio Autistic Activists and Autism Advocates

Written by Cortney Drake

Calling Ohio autistic activists and autism advocates: If you support the fact that autistic individuals should have a voice in policies that directly affect us despite exclusionary language, whether you're part of the community or an ally - please contribute to the Autism Rec. Forums being held throughout the state! Can't make it in person? Share your recommendations online (link provided below)! Solidarity and support are needed to ensure that all individuals not only have a voice and visibility, but also have access to the support, acceptance, and resources needed. No decisions about us, without us!


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on April 24, 2012 at 10:45am


Webinar Survey: Parenting Daughters on the Autism Spectrum

Autism Women's Network has begun doing webinars, and we'd like to know what you want! 

We are putting together three interest surveys: one each for (1) autistic parents who are parenting autistic daughters, neurotypical parents and caregivers parenting daughters with autism (2) autistic women (3) and the professionals that work with us in order to figure out what the community needs, and where their interests are focused. 

(*) This is the first survey in the series.

We value your input and appreciate you taking the time to share your opinions and suggestions with us. Please follow the link to take the brief 10 question survey. Thank you! 

Date: 
Saturday, April 14, 2012 - 1:00am EDT - Saturday, July 14, 2012 - 1:00am EDT

Webinar Survey: Autistic Parents Parenting Autistic Daughters & NT Parents/Caregivers Parenting Daughters with Autism

Autism Women's Network has begun doing webinars, and we'd like to know what you want!


We are putting together three interest surveys: one each for (1) autistic parents who are parenting autistic daughters, neurotypical parents and caregivers parenting daughters with autism (2) autistic women (3) and the professionals that work with us in order to figure out what the community needs, and where their interests are focused.  

(*) This is the first survey in the series. 

We value your input and appreciate you taking the time to share your opinions and suggestions with us. Please follow the link to take the brief 10 question survey. Thank you! http://bit.ly/IKoO4r


Posted in:

on April 14, 2012 at 3:42pm


Autistic, Parenting, Homeschooling and Acceptance

Written by Mara Fritts

Mara Fritts is the mother of four, she is diagnosed AS, and she sits on the AWN Board of Directors.

I started Homeschooling when our oldest son was 7 years old, after fighting a school system that would not listen to my pleas that there was something different about him. I saw it. Why didn't they? Why did they say that our son was normal when his teacher said there was something different with him? I saw him as being alone and not understanding why he was having issues at school. Why didn't all the children throw gravel at other students when they were frustrated ? 

When our son was 5 years old, he started Kindergarten in a private school. They said that he was too immature, so they put him into the preschool. Our psychologist at the time said our son has Attention Deficit and Hyperactive Disorder (ADHD) and that he needed additional observations. We were told the public school would also do testing on him, so we sent him. 

From the beginning, we had issues with getting the school to observe our son. They were supposed to look at him at the beginning of the school year. After several months of not hearing anything and many phone calls, they finally had the Occupational Therapist (OT) and the school psychologist look at him. They said that everything was normal. His homeroom teacher, who was a former resource teacher, disagreed with this. She helped us place him in a behavioral program from the local university. It was the only help she could offer. It was based on rewards, but he wasn't really interested in earning anything. Over that summer, our son went to a private OT to help with the hand weakness and balance issues that his pediatrician diagnosed him with. The balance issues were something else that the school missed.


Posted in:

on April 2, 2012 at 1:52pm


LONG TERM CARE (NURSING HOME) INSURANCE DISCRIMINATION

Hi!  I just went to a financial advisor and found out that long term care coverage is not available for anyone with "cognitive deficits", and Asperger's is apparently a "cognitive deficit". I'm trying to preserve my assets for my NT son in case I need a nursing home in 10 or 15 years.

It's interesting that as a high-functioning aspie I'm not considered to be disabled and therefore can't get any special benefits or care, but as a high-functioning aspie I'm not allowed to provide my own benefits and care.

This is something that needs a solution.

 

Second Annual Autism Acceptance Event Making a Difference!

Paula C. Durbin Westby is leading the way into a month which many autistic advocates dread. Why?
Written by Sharon daVanport

Most awareness campaigns have little to do with supports to benefit autistic adults, and it's become increasingly difficult for many self advocates to breathe through April's superficial autism frills. Is there anything to look forward to in the month of April? 

Within the autism community, April has always been known for it's one buzz word, "awareness." Not anymore. Now you will see a new kind of confirmation which helps many in our community not feel the dread of the empty campaigns that hold little value toward helping autistics and their families. What is it? One word. ACCEPTANCE. On April 2nd, and continuing throughout the month of April, autistic advocates and their allies will be spending their time making a new kind of difference by communicating about acceptance, not tolerance and pro-neurodiversity. 


Posted in:

on March 29, 2012 at 6:39pm


Uprooting

As some of you may know, last year my partner Lori, who is on the autism spectrum, moved with me from Oakland, CA to Baltimore, MD so we could be closer to my aging parents. There have been a lot of ups and downs. The biggest "down" that has had lasting repercussions was that Lori lost her SSI (Supplemental Security Income). With everything going on, we didn't think about the fact that co-owning our house would be considered an asset. What this has meant is that she's had to work more than full time hours to expand her freelance web business. That has put immense pressure on her to take on way too many things at once. For those of you on the spectrum, you can imagine how difficult this has been. It's way too much for her to handle and yet she is handling it probably way better than she (or I) thought she could. I think the "up" is that she sees how capable she is of running her business despite the challenges. That said, it's still way too much. With SSI she was able to work more or less as she needed for the most part. I don't think things are sustainable the way they are - she's working too many hours without getting time to relax and turn off. Her brain needs a break.


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15 Things You Should Never Say To An Autistic

Trigger warning: Quotes of things that shouldn't be said. They can be ableist and triggering.
Written by Lydia Brown

There could really be a hundred or a thousand of these, but I've decided to choose just fifteen for the sake of brevity and not imploding anyone's browser. All of these things have actually been said to Autistics, children and adults, and some of them are unfortunately very common. Some happen more often over the internet, and some happen more often in person, but they're all phrases or questions that can be incredibly hurtful. Sometimes people who say these things are well-meaning, which can make the impact even worse. Especially in those cases, people might not understand why these can be so offensive and hurtful, and occasionally insist that what they're saying is a compliment, even when it's not.

1. "So is that like being retarded?"

Factually speaking, Autistic people in many cases do not have an intellectual or cognitive disability, and many people with intellectual or cognitive disabilities are not also Autistic. There are some Autistic people who also have an intellectual or cognitive disability. Nevertheless, the word "retarded" is often very hurtful for Autistic people, as it is frequently used as an insult to dehumanize people with developmental and intellectual disabilities. The r-word is often used to express hatred for people with disabilities. Please don't use it. 

2. "You should be very proud of yourself. You seem so normal. I couldn't tell that you're Autistic."

While this is rarely said to Autistic people whose disability is very visible, it is very frequently said to Autistic people with much more invisible disability. It's insulting because it suggests that because the person doesn't appear to be disabled or doesn't fit preconceptions of what Autistic people are supposed to sound or act like, that person must therefore not have a disability or be Autistic. It also suggests that "normal" is the standard to which anyone should aspire to appear or act (and that "normalization" should be the ultimate goal of therapies or treatments for autism rather than pragmatic coping skills to navigate a world where Autistics are a minority), and therefore that it's not good to act or speak in ways commonly associated with being Autistic, even if those behaviors don't actually hurt anyone. This is very dismissive of a person's disability and experiences. 

3. "You must be very high-functioning."

Many Autistic adults take issue with the "high-functioning" and "low-functioning" labels for a variety of reasons. Some people have received both labels but at different times in their lives, and many Autistics have very uneven skill levels -- some people who might be able to articulate their ideas very well at a conference may be unable to travel alone or cook for themselves, while some people who are unable to communicate with oral speech might be able to live independently. That debate aside, this is also very dismissive of a person's individual experiences with disability. Unless you know someone very, very well, you have no way of knowing what specific adaptive functioning skills or life skills a person has or what his or her needs and challenges might be, and it's not possible to acquire that information simply by looking at a person.


Posted in:

on February 27, 2012 at 1:24pm


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