Intro to Makayla
My name is Mary and mother of Makayla who is 4 years old and is diagnosed with Autism Spectrum Disorder since the age of 2. She also has hypotonia (low muscle tone in every muscle of her body), dyspraxia motor and verbal (low muscle tone in face and slow to get communication to her brain) and Sensory Intergration Dysfunction. Makayla has made huge improvements since birth but still is struggling especially in communication. I was wondering if there was any other moms who have little girls her age in this group that can relate the struggles that I am going through with Makayla. She is in school and we pay on the side for her to go to speech. Without speech, I don't think she would be talking today. I am so sad for my Makayla when I see other 4 years old without any difficulties and that normal daily living activities for them are so easy. My husband I work very hard with Makayla and sometimes she gets it and sometimes she doesn't. Or she will forget. It is very frustrating trying to teach Makayla the normal daily living activities when she doesn't grab the concept after like the 50th time and especially when she is having a melt down and I don't know what she wants.
She is a very bright girl. She knows how to count to 20, knows her colors, knows her shapes, knows her ABC's and knows some of her numbers. She is learning how to share with her little sister Arianna who is going to be three soon. Sharing is very difficult for her right now. I am teaching her how to make friends right now. She doesn't know how to, like her sister Arianna does. It's amazing to see the difference between both of my daughters. Arianna doesn't have Austim but has Acid reflux and is allergic to milk. She is also very very very hyperactive. lol. She is my boy.
Welcome to our AWN Forum, Mary, We look forward to your input, and sharing Makayla's experiences.
Your family experience with how you strategize accomodating Makayla's neuro-differences will no doubt be valuable.
-A good day to you and yours.
Hi, Mary! I have two kids, too. My daughter is 11 and my son is 8. It really is a challenge when they're young, especially if there are any special needs (my kids are not on the spectrum, but they do have food allergies.) Hang in there, you sound like a good mom :)
Another good place to get support from other parents of kids on the spectrum is the ASPERGER list at http://listserv.icors.org
I'd love to hear more about Makayla.
Welcome to AWN! I don't have kids, but my little brother is 6.
Welcome Mary! I have 2 boys, aged 5 and 3, both at various points on the spectrum. I know it's frustrating for you. I wish I had better advice than to just keep doing what you're doing.